“Following these two years of crisis, which have noticeably diminished the fundraising capacity of this type of entity, support like that offered by SIGAUS is essential to be able to continue with our projects”, said José Ángel Aibar, the President of Dravet Syndrome Foundation, one of the entities with which the collaboration agreement has been renewed for the fifth consecutive year. The Foundation works to support children and their families suffering from this rare disease that manifests itself at a very early age, and is characterised by prolonged seizures, behavioural and autistic spectrum disorders and delayed motor and language development, among other symptoms. SIGAUS’ contribution will allow them to continue with their respite programmes for caregivers, psychosocial care for siblings of people with the syndrome, and programmes relating to studies and research into this disease.

The signing ceremony for this new collaboration agreement also served to revalidate the support to two more social organisations, APADIS and ‘Porque Viven’ Foundation. SIGAUS held a face-to-face meeting with them to learn about the projects in which they are currently working for the continuous improvement of the quality of life of the people they serve and their families, after two years in which it has not been possible due to the pandemic.

“The collaboration of companies and private entities such as SIGAUS, greatly strengthen our mission, because they enable us to generate and continue developing projects that would otherwise be very difficult to carry out. Their focus on supporting the most vulnerable makes it possible for us to work together and extend the advantages to these people at risk of exclusion in a very powerful way,” said Miguel Angel Jimenez, Managing Director of APADIS, which works to improve the development and independence of people with disabilities in their daily lives and actively support their families.